GMAN Newsletter – November 2016

Myeloma Canada Launches Database

On September 1, Myeloma Canada officially launched the Myeloma Canada Research Network National Multiple Myeloma Database. A first of its kind in Canada, “the Database is a key stepping stone to finding a cure” said Dr. Reece, Chair, Multiple Myeloma Clinical Trials Group of the Canadian Cancer Trials Group, and Director, Program for Multiple Myeloma and Related Diseases in the Department of Medical Oncology and Hematology at Princess Margaret Cancer Centre/University of Toronto, and Member of the Board of Directors of Myeloma Canada. Developed in full collaboration with patients and medical experts, the database will inform clinical practice, future myeloma research, clinical trial development, and sound health policies for multiple myeloma patients.

Co-Founder and Chairman of Myeloma Canada and the MCRN, Aldo Del Col, stated “The MCRN has provided a forum to support patient and medical expert dialogue to identify and understand the true multiple myeloma experience in Canada. Learn more HERE.

Romania Holds Nurse Training for Multiple Myeloma

In August 2016, Myeloma Euronet Romania (MER) received a request to hold a training course for hematological nurses who will be working in the newly build transplant section at the University Hospital in Bucharest. MER invited Erik Aerts of University Hospital in Zurich and past EBMT President to present the training course, which took place on the 5th and 6th of November at the University Hospital in Bucharest.

Several MM patients attended the first part of the training session for the nurses. In addition to Erik Aerts, who made presentations throughout the 2 days of training sessions, Dr. Alina Tanase, Transplant Unit at the Fundeni Hospital and Conf. Dr Horia Bumbea, University Hospital in Bucharest, also made presentations for the 80 participating nurses.

 

National Multiple Myeloma Day Celebrated in Poland

On September 3rd Poland celebrated National Multiple Myeloma Day in Poland with the goal of improving public awareness of the disease. To view a video of the event, click HERE.

 

Korea Blood Cancer Association Seminar for Multiple Myeloma Patients

A seminar for multiple myeloma patients that was hosted by Korea Blood Cancer Association (KBCA) and KoreanMultiple Myeloma Working Party (KMMWP) was held on 29th November. Three-hundred-and-fifty patients attended the seminar to learn about MM, and get answers to their questions.

At the opening, President of KBCA, Chairman of Korea Federation of Multiple Myeloma Patients (KFMMP), and Chairman of KMMWP gave an official welcome. The IMFs Senior Vice President Danial Navid, JD, spoke about the work of the IMF and GMAN.

Five doctors discussed treatment options, transplant, relapsed/refractory treatment, as well as prospects and clinical research for MM. After the presentation, a question-and-answer session was held.

 

We Would Like to Thank Our Sponsors: Takeda Oncology, Celgene, Amgen, and Bristol-Myers Squibb

 

 

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