Vol.1 Issue 7 November  2015


Website Update for AIL Crafts New Look

AIL_newlogoThe Italian Association Against Leukemia-Lymphoma and Myeloma (AIL) has a new look online with a completely redesigned website, viewable here. Streamlined for a more intuitive approach, the new website has updated visual icons and clickable headings to clean-up the menu. Do you think it might be time for your organization to update the website? If so, contact Ray Wezik at [email protected] to find out how the IMF may be able to help.



EU_friendshipNew Drug for European Patients

We are pleased to announce another treatment option available for myeloma patients in the European Union. Farydak (panobinostat), manufactured by Novartis, has been approved in combination with bortezomib (Velcade) and dexamethasone, for the treatment of adult patients with relapsed and/or refractory myeloma who have received at least two prior regimens including bortezomib and an immunomodulatory agent (IMiD).  Click here to read their press release.



Save the Date for Annual GMAN Summit

SaveDateThe Annual GMAN Summit will be held June 9-11, 2016 in Copenhagen during the EHA meeting. Based on member feedback, our summit will include two days of meetings, as well as a welcome reception and small group sessions. We would love to hear your thoughts and ideas on suggested topics, presentations and other items you would like to see on the agenda.  Please click here to visit the GMAN Forum and join the discussion today!



Save the Date for Annual GMAN Summit

AnnounceLeukaemiehilfe Rhein Main (LHRM) has once again elected Anita Waldmann as President. Anita founded LHRM in 1991 when her son Oliver was diagnosed with AML. Additionally, Christa Kolbe-Geipert, the leader of LHRM’s myeloma group has been confirmed as secretary. Congratulations to Anita and Christa and keep up the great work!

AMEN, the Israeli Association of Myeloma Patients, will hold major meetings this month for patients and their families at Sheba Medical Center and Soroka Hospital. Speakers for these events include leading professors and heads of hospital departments. This month will also see the start of an internet campaign to raise awareness on myeloma and increase access to patients through engaging key decision makers in government. Visit AMEN’s website here for more information.

Check out the member forum under the “Member Articles and Member News” thread for more member happenings and do not forget to submit your own announcements for publication.



To submit a news story for publication, please contact
Raymond Wezik, Global Advocacy Executive, International Myeloma Foundation at [email protected].

Click here to download a PDF version