GMAN Newsletter – March 2016

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Vol.2 Issue 3 gman.myeloma.org March  2016

 

GMAN Annual Summit June 9—11

gman_globeThe Global Myeloma Action Network (GMAN) will host its annual international summit on June 9-11, 2016 in Copenhagen, Denmark. Attendees will learn about advances in myeloma treatment, hear what colleagues are doing around the world, and connect with fellow members and industry partners. The event begins with cocktails and networking on the evening of June 9th, followed by the main seminar on the 10th, and a general session in the morning of June 11th. The full agenda and invitations will be sent to GMAN members and partners in the coming weeks. We hope to see all of you in Copenhagen.

 


Upcoming Webinar: 2015 FDA Approved Myeloma Treatments

Rafat_Abonour2015On May 13th, Dr. Rafat Abonour, Director, Multiple Myeloma Program at Indiana University Simon Cancer Center, will speak about the recent myeloma drugs approved by the Food and Drug Administration (FDA) and their real world impact in the US. With many of these drugs slated for approval or trials around the world, we hope members will join us to hear about treatments that could soon be available in their health system.

Dr. Abonour established and directs the multiple myeloma and plasma cell program at Indiana University. His clinical interests include novel therapies for multiple myeloma and hematopoietic stem cell processing, including gene therapy. Dr. Abonour is principal or co-investigator of several completed and on-going clinical trials. Dr. Abonour has authored or coauthored numerous peer-reviewed manuscripts, book chapters, and review articles. His worked has been published in key medical research journals including Blood, New England Journal of Medicine and Nature Medicine. We are honored that he will present for GMAN this coming May. To learn more about Dr. Abonour or to register for the webinar, click here.

 


Member Announcements

Armenia – Armenian Hematology Association

Armenia_GMANThe executive committee of the Armenian Hematology Association (AHA) has declared 2016 a year for myeloma awareness. AHA intends to organize a number of events throughout the year to raise awareness about modern approaches in diagnosis, treatment and care of myeloma. A series of workshops will be conducted for regional and family doctors that will lead to early detection and timely treatment of the disease. Webinar courses are planned for regional doctors so that they may attend without interfering with their work schedule; ensuring maximum participation.

With the support of the International Myeloma Foundation, the patient handbook and other materials will be translated into Armenian for the first time and educational seminars for myeloma patients and their family members will be conducted. A number of other events, such as seminars and awareness days, are intended to disseminate accurate and scientific information among a broad range of healthcare specialists and the general public alike. AHA looks forward to expanded cooperation with the International Myeloma Foundation and becoming an even more active member of GMAN.

 

United States – International Myeloma Foundation

MAM 2016 logo sq TWIBx400March is Myeloma Action Month! The International Myeloma Foundation was the first organization to declare March as “Myeloma Awareness Month” (MAM). This year, we are elevating our program and re-coining the MAM acronym to stand for “Myeloma ACTION Month.” Being aware of this rare disease can guide patients to ask their doctors to consider myeloma as a possible cause for their symptoms, leading to earlier diagnosis. We are asking you to join us in “Myeloma ACTION Month” to design other such measurable actions to empower patients and arm them with knowledge. To learn more about MAM, click here.

 


 

To submit a news story for publication, please contact
Raymond Wezik, Global Advocacy Executive, International Myeloma Foundation at rwezik@myeloma.org.

Click here to download a PDF version

 

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