|Vol.1 Issue 2||gman.myeloma.org||June 1, 2015|
In Memoriam—Mike Katz, MBA
On April 26, 2015 the IMF lost a founding Board member who brought myeloma patient advocacy to the forefront. “Susie and I lost a dear and wonderful friend,” said IMF Chairman Dr. Brian Durie. “Mike Katz routinely inspired patients to take charge of their myeloma—to understand what is going on and get questions answered. He was a colleague and friend to patients and physicians alike. Mike, we will all miss you, we love you and will remember you always.” Read more about Mike Katz here.
Advocates in Paraguay Fight for Better Drug Access
Last month, Gabriela Simancas and other members of Fundación Nacional Unidos contra el Cáncer(FUNCA) attended a meeting between lawmakers and the Instituto de Previsión Social (ISP) to address the chronic shortage of drugs for cancer patients in the country. Paraguay has a limited supply of drugs for diseases including myeloma, and patients are often required to travel to Asunción, the capital of the country, for treatment. Read more about the meeting here. Please note that this link is in Spanish.
Myeloma UK Awareness Week June 21-28
This June, Myeloma UK will hold its annual awareness week from the 21st through the 28th with the central theme of “walk with me.” Myeloma Awareness Week is about sharing experiences of what it is like to live with myeloma and raising awareness of the needs of patients and those caring for them. “Walk with me” symbolizes the myeloma patient journey and raises funds to support the work of Myeloma UK. We wish Myeloma UK a successful week! To learn more about Myeloma UK and to take part in their awareness campaign, visit their webpage here.
GMAN Global Summit at EHA
On June 10th and 11th GMAN will hold its annual summit during the European Hematology Association (EHA). This year, 25 member groups from 23 countries are expected to attend. The schedule of events includes a welcome reception on June 10th followed by a full day of member discussions as well as presentations from pharmaceutical partners on June 11th. Based on data collected from members around the world, the group will focus on challenges with patient education, access to treatment, and organizational resources. The goal is for GMAN members to share experiences and best practices used to address challenges and ultimately help improve the lives of myeloma patients around the world.
To submit a news story for publication, please contact
Raymond Wezik, Global Advocacy Executive, International Myeloma Foundation at email@example.com.