|Vol.1 Issue 3||gman.myeloma.org||July, 2015|
GMAN Summit 2015—Vienna, Austria
On June 10th and 11th, members of the Global Myeloma Action Network met in Vienna, Austria to discuss issues facing myeloma patient organizations around the world. Members from 23 countries, including those from the continents of South America, Asia and Oceania, participated in the event. Topics included how to care for caregivers, sustainability of support groups and access to treatments. In addition to structured discussions, advocates also had an opportunity to network with members of the pharmaceutical industry as well as one another. With universally positive feedback, next year’s meeting in Copenhagen is poised to be an even bigger success. Pictures from this year’s summit are available here and can be found on page 2.
10 Years of AMEN
AMEN, the myeloma patient organization in Israel, celebrated its 10 year anniversary in May with a week entirely dedicated to raising awareness of myeloma. During the week, AMEN held a total of three conferences. The first conference was held for nurses who treat myeloma patients in hospitals across the country. The second was a scientific conference held at the Weitzman Institute for its clinical doctors and researchers from around the world to discuss “hot”issues in the study and treatment of patients with myeloma. Chief guest at the conference was Professor Gareth Morgan, Institute of Myeloma Treatment and Research, University Arkansas, United States. The final conference was AMEN’s Annual conference for 550 patients and their families as well as doctors and researchers from Israel and abroad who came to present, guide, participate, answer questions and learn. A video was screened that expressed the important connection between researchers and clinical practice,and the aim to eventually provide cures for patients and a high quality of life.
To submit a news story for publication, please contact
Raymond Wezik, Global Advocacy Executive, International Myeloma Foundation at [email protected].