|Vol.2 Issue 2||gman.myeloma.org||February 2016|
Susie Novis Durie Grant Application Due February 29th
If you have not yet sent in your application for the Susie Novis Durie Educational Grant, please do so by February 29th. For more information and to submit an application, please click here. If you have any questions or need assistance completing the grant request, please contact Ray Wezik at [email protected].
First Ever IMF European Patient and Family Seminar in Budapest, Hungary
Emphasizing education, advocacy and support, the IMF Patient & Family Seminars empower patients and provide invaluable information to the myeloma community. The IMF will host a Patient & Family Seminar for the first time in the city of Budapest, Hungary on March 19, 2016 (at the MOHA HOUSE). Dr. Rafat Abonour (Indiana University, Simon Cancer Center) along with Dr. Mikala Gábor (St. Lazlo Hospital) will present on new research and treatments for multiple myeloma. To learn more about IMF Patient & Family Seminars, click HERE.
Israel – AMEN
The Israeli Association of Myeloma Patients (AMEN) has created a program, which funds dental care for myeloma patients prescribed drugs from the family of bisphosphonates. Patients in Israel who are taking pamidronate (Aredia) or zoledronic acid (Zometa) must follow certain procedures in dental care before starting treatment to prevent damage to the jaw. The Israeli health system does not cover these required procedures and patients previously found themselves unable to cover the out of pocket expense until the AMEN program began to cover the cost.
AMEN also started a special program for myeloma patients under the age of 55 to address their specific needs and work-life balance. Meetings are held every two months which focus on medical, psychological and treatment issues, as well as weekends organized with lectures and activities for patients and their families.
Denmark – Dansk Myelomatose Forening
Our Denmark member has many events planned for the start of 2016. Several meetings are organized for the 11 network groups of the organization, where patients and their family members share all aspects of living with myeloma, including a spring and fall meeting with network group leaders. On March 12 a general meeting will be held for patients with a special appearance by a very famous actress in Denmark, Søs Egelind, who will speak about how she lives with blood cancer.
In addition, on April 2nd the group will hold three regional meetings for patients to hear from doctors from various local hospitals about myeloma, the regional protocols for treatment, and other aspects of the disease. Members will meet Henrik Gregersen, Chief Hematologist in the North and nurses from the hospital in Aalborg. In the South, members will hear from Maja Hinge, Haematologist and Ph.d. student. Finally, on Zealand, Carsten Helleberg, Chief Haematologist in Herlev Hospital will talk before dinner and Chief Haematologist Anette Vangsted in the afternoon.
If you would like more information on these programs, or about Dansk Myelomatose Forening, please contact Bibi Moe, Network Coordinator at [email protected].
To submit a news story for publication, please contact
Raymond Wezik, Global Advocacy Executive, International Myeloma Foundation at [email protected].