|Vol.1 Issue 1||gman.myeloma.org||May 1, 2015|
IMF Myeloma Awareness Month 2015 Success
Since 2009, the International Myeloma Foundation (IMF) has celebrated March as Myeloma Awareness Month with activities and events across the United States. This year, the IMF added a “Mambo for Myeloma” event in which patients, family and friends shared videos of themselves dancing and challenged others to do the same to raise awareness. Additionally, the IMF had great success with patients working with their town, city or state to officially declare March 2015 as “Myeloma Awareness Month.” 37 proclamations were issued, as well as a Congressional Resolution, championed by Rep. Brian Higgins of New York. The IMF looks forward to Myeloma Awareness Month 2016! Learn more about IMF’s awareness month by visiting mam.myeloma.org.
AMEN Celebrates Myeloma Awareness Week
AMEN, the Israeli Association of Myeloma Patients, will be celebrating its 10th annual Myeloma Awareness Week beginning May 26th. Several activities are planned to take place at the Weizmann Institute of Science, including a convention for nurses and social workers on May 26th, a multiple myeloma workshop on May 28th, and the yearly AMEN meeting for all patients, family and medical staff on the 29th. If you would like more information about the week or AMEN, visit www.amen.org.il.
IMF Advocacy in the United States
The IMF US advocacy team has been actively working at the state and federal level to push for access to oral, anticancer medications for our patients across the country. The two IMF-led coalitions, the Patients Equal Access Coalition (PEAC) and the State Patients Equal Access Coalition (SPEAC), have been working concurrently to assist in the passage of oral parity laws, which will ensure that insurance companies cover the aforementioned oral medications on the same terms and conditions as their more traditional intravenous counterparts. Through the restructuring of outdated benefit designs, patients will have access to their oral anticancer medications at a significantly reduced cost. Currently, 39 states and the District of Columbia have oral parity laws in place, while, at the federal level, the advocacy team is in the process of identifying key sponsors to reintroduce the bill for this year. Through the combined efforts of the PEAC and SPEAC coalitions, we hope to make 2015 a landmark year for patient access to treatments. For more information on the IMF’s U.S. Advocacy program, visit advocacy.myeloma.org.
GMAN Steering Committee Member Additions
The Global Myeloma Action Network is pleased to announce that the following members have agreed to serve on the GMAN steering committee for one year: Aldo Del Col of Myeloma Canada, Viorica Cursaru of Myeloma Euronet Romania, Gabriela Simancas of FUNCA, and Lee Chul Hwan of the Korean Blood Cancer Association. We look forward to a busy and productive year. Thank you all!
To submit a news story for publication, please contact
Raymond Wezik, Global Advocacy Executive, International Myeloma Foundation at [email protected].