GMAN Funding Support Helps Launch Three Innovative Projects

When we sent out the call for applications for GMANs 2017 Susie Novis Durie Grant, we knew that we would be reviewing proposals for many innovative and important projects focused on improving the lives of myeloma patients. We were thrilled by the overabundance of ideas that are so worthy of funding, and we wish we could have supported many more of your initiatives! I am happy to share with you summaries of the projects that were selected after much consideration.

Susie Novis Durie
IMF President

Argentina: Fundacion Argentina de Mieloma (FAM)

While the law in Argentina grants equal rights to all, not all myeloma patients have equal access to the same treatment options. FAM seeks to achieve equality of care for all people with myeloma, empowering patients and caregivers to overcome avoidable obstacles on the path to treatment. The 2017 Susie Novis Durie Grant will enable FAM to train an educator who will travel to remote regions of low economic resources and lack of access to means of communication, to deploy this educator to 5 identified regions to visit local patients and medical treatment centers, and to organize regional meetings for patients and caregivers with the participation of local healthcare professionals. FAM staff will continue to offer support and assistance to this newly formed network of myeloma patients and healthcare providers from FAM’s headquarters in Buenos Aires. We are very excited to have the support to fulfill one of our objectives: to reach more myeloma patients throughout Argentina, says Mariana Auad, FAM Coordinator General.


Austria: Myelom- und Lymphomhilfesterreich

Improving and enhancing the comprehension of medical information about myeloma is an important contributing factor to patient outcomes and quality of life, and ensures that patients are better able to take a participatory role in their medical care. In Austria, there is a pressing need to ensure that the education of myeloma patients and their loved ones is made as easily accessible and digestible as possible. This project will create and produce an engaging, user-friendly, web-based lesson plan about the many aspects of myeloma and its treatment, thereby raising awareness and facilitating the integration of myeloma education into the challenging daily lives of patients and caregivers. We are opening a new chapter of informing-tools, says Elfi Jirsa, President of Myelom- und Lymphomhilfe sterreich.



Romania: Myeloma Euronet Romania (MER)

The 2017 Susie Novis Durie Grant will support the implementation of one of MERs most important objectives in the capacity building of Romanias medical nurses. Due to the current struggle with a shortage of medical doctors to provide adequate care to patients with myeloma, the role of medical nurses in Romania is progressively more essential to both the quality of care and the quality of life of patients with myeloma. This project will build the professional capacity of nurses by supporting a formal, expert-driven, two-day training session for nurses, while also addressing improving the relationship between nurses and patients in alignment with EU medical and ethical standards. On behalf on the Romanian patients whom I represent, I would like to express my gratitude for your consideration of our project, says Viorica Cursaru, MER Director General, In as much as I am concerned, I am deeply touched by your understanding of our situation as well as your willingness to assist us in addressing it.




We Thank Our Sponsors: Amgen, Bristol-Myers Squibb, Celgene, Genentech, and Takeda.